Programs that provide treatment, fuel prevention and fight the stigma of HIV/AIDS should be expanded, not eliminated, as we work toward eradicating the disease that ended Ryan White’s life.
FDA approves twice-a-year shot to prevent HIV
The U.S. Food and Drug Administration has approved the world’s only twice-a-year shot to prevent HIV. (Scripps News)
Scripps News
Ryan White was a spirited, bright kid who loved basketball, Nintendo and dreaming big. In 1984, 13-year-old Ryan contracted HIV through a contaminated blood transfusion used to treat his hemophilia.
With widespread misconceptions about HIV/AIDS dominating the headlines, and fear overruling facts, Ryan was barred from attending his school and driven from his hometown of Kokomo, Indiana. His harrowing story suddenly thrust Ryan onto the national stage, where he transformed the attention into a powerful force for changing perceptions about those living with HIV/AIDS.
He had no idea how far his message would reach. Yet he was determined to use it for the greater good. His courage inspired the creation of the Elton John AIDS Foundation, which continues to help people across America, and around the world, stay safe and well.
At the time of his diagnosis, doctors gave Ryan only six months to live. On April 8, 1990, six precious years later, we sat together at Ryan’s bedside and held his hands as he lost his young, heroic life to AIDS. First lady Barbara Bush attended his funeral, and businessman Donald Trump came to the family home to pay his respects.
When Americans needed to take compassionate action, Ryan opened the door and urged everyone to take heart and to help.
Ryan White CARE Act is saving lives
Four months later, in his name, Congress nearly unanimously enacted the Ryan White CARE Act – providing essential HIV care and treatment to Americans living with the virus. After years of fearmongering and paralysis, the U.S. government had finally committed to join the fight against our common enemy: AIDS.
Ryan would be grateful for the progress being made. Today, more than 500,000 Americans living with HIV get lifesaving treatment through the Ryan White CARE Act.
In 2019, President Trump proudly launched the End the HIV Epidemic initiative in his State of the Union address − a focused prevention effort to end the HIV epidemic in America by 2030.
This evidence-based strategic initiative has achieved remarkable results, reducing new HIV infections by 21% in targeted communities and connecting people newly diagnosed with HIV to vital care and support services.
This push to end AIDS is in full swing across America, but the work is not done yet – with young people, particularly in the South, now most severely impacted.
We are grateful that the draft budget before Congress continues critically important funding for the Ryan White CARE Act and the End the HIV Epidemic efforts. That is an affirmation of these programs’ effectiveness and bipartisan support.
Proposed budget cuts threaten progress on HIV
However, the proposal also would end federal funding to states for HIV surveillance, testing and education; for community-based organizations that reach those most at risk; and for substance abuse treatment and mental health programs that are crucial for driving down HIV infections.
Attempts to cut Medicaid are also alarming, as more than 40% of people living with HIV have their care and treatment covered by Medicaid.
Without this essential insurance, scores of people living with HIV won’t get the care and medicines they need to keep them healthy. The president has said don’t mess with Medicaid. We agree.
Programs that provide treatment, fuel prevention and fight stigma should be expanded, not eliminated, as we work toward eradicating the disease that ended Ryan’s life.
The game-changing opportunity of the moment is to scale up prevention medication that keeps people HIV-free. The recent American-led development of PrEP − a pill or shot that prevents the virus from taking hold − is just the tool we need to end AIDS, but only if we make it accessible to those who need it.
The economics are compelling: 14,000 people can receive generic PrEP ($30 annually) for the lifetime cost of treating one person with HIV ($420,285) − keeping Americans healthy, HIV-free and productive.
The moment of truth is here. As the administration and Congress consider their investment priorities for next year, we urge them to continue joining forces in the fight against AIDS in the United States and worldwide.
Together, their investments over time have created this once-in-a-generation opportunity to end AIDS in America by 2030, as called for by President Trump. Together they can seize that opportunity by banking on prevention.
Ryan would expect nothing less.
Jeanne White-Ginder is the mother of Ryan White. World-renowned musician Elton John established the Elton John AIDS Foundation in 1992.
